Thursday, July 15, 2010
2nd and 3rd treatment - Update
The second round of chemo was the hardest so far. I was very sick to my stomach and ran a high fever for the first four days. I didn’t move an inch for at least the first two days. This treatment also brought on the hair loss. I knew I was going to lose my hair but actually going through the process was very hard. I would leave hair everywhere. When I took a shower my hair would come out in handfuls and clog the shower. It would get all over my towel, clothes, pillow, everything! I just wanted it all to fall out at once already but I wasn’t that lucky. I looked like a middle age bald man by the time my third treatment was here.
Not only was I sick and losing my hair, but my emotions where all over the place too. I was very depressed and I was crying a lot. Then my mother found out that she had ovarian cancer. Since we both carry the BRCA 2 gene my mother had her ovaries removed (to be on the safe side) and when the pathology report came back we were plagued again. It was now my turn to support someone going through the scary stages of cancer. She had to have surgery to stage her type of cancer and I was a mess trying to be there for her. I couldn’t believe this was happening to our family. Cancer was all I thought about and it was everywhere. I started to be consumed with the notion that I was going to get cancer everywhere and die. I was very depressed. I started to lack motivation to do anything and thought negatively about everything. I couldn’t find the positive and everyone was telling me my attitude was the determining factor in beating this crap. It has been the lowest point of this whole journey. Once my mother was staged I started to feel better. We found out she was stage 1 and needed chemo for six treatments every three weeks. It wasn’t ideal but it was doable.
Once I found out that my mom was going to be alright it was time for my third round of chemo. My aunt Debbie, Brian, and my good friend Jessica came to my third round of chemo. It was nice to have them all there to cheer me on and make me laugh. This whole experience has made me appreciate my family and friendships so much more. The third round wasn’t that bad. I was sick to my stomach but not for too long and my temp stayed around normal level. My hair fell out some more and now I’m bald. I have fuzzed blonde hair all around my head but I look bald. I’m used to it now but I’m so sick of wearing scarfs to cover my head. If I had a lot of confidence I would sport the bald look. I’m starting to feel more like myself this round. I haven’t been too tired, sad, or sick. I’ve been eating a lot of unhealthy food. I feel like I’m pregnant because I crave everything unhealthy and I can smell everything and anyone. I’m trying to get mentally prepared for the chemo treatments to end. In a weird way I’ve come to rely on chemo to make me cancer free. Knowing that I have chemo running through my body lets me relax about getting cancer somewhere else. A counselor I met told me that people who deal with cancer lose their innocence about their health. I feel that is absolutely true because once I stop getting chemo I’m scared my cancer will come back. This is where trust comes into play. I have to trust in God that whatever happens to my body is his will. I have to enjoy the “here and now” and not stress about the future and “what if’s”. This is a major mental challenge. I have to trick my brain into relaxing and enjoying life knowing that I could get cancer back anytime. Ugh…..major struggle but I can do it! I just hope cancer isn’t in the cards for me anymore.
Wednesday, June 16, 2010
Second Round - June 16, 2010
So I made it through my first treatment along with all the side effects! Now only three more to go and hopefully they will go just as smoothly. The first five days after treatment were filled with nausea and fatigue, but luckily I was not too miserable and I was able to go back to work the next Monday. From Monday through Wednesday I was very fatigued. My knees really hurt and even the smallest task would make me feel exhausted. After a full week had passed I found myself getting back to normal with my daily actives, food regimen, and just feeling like a normal person.
I haven't lost my hair yet but I am starting to shed a little more than normal. I think I'm still in denial about losing my hair. I'm just not sure how to mentally prepare for the inevitable. Today I'm getting my second treatment and by this weekend I should be bald. The only thing that makes me feel better is the fact that Brian's favorite TV character is George Costanza and he is bald. Also, I only have a couple more treatments until I can start growing my hair back. I'm going to pray that it comes back exactly the same as when it left. I also need to pray that my hair grows FAST so I can start rocking the short due and begin the long journey of growing it back out.
Right now I'm at my second treatment and a harpist has come to play for everyone. It's very nice and relaxing. Today I also noticed that there was another girl somewhat around my age getting the same chemo drugs as myself. I'm unsure what treatment round she was on but I wish her luck! I'm nervous about my second treatment. I have some emotional battles ahead of me and I'm wondering how I'm going to handle them. I'm trying to stay positive but this whole journey is so emotionally challenging. Well, time to relax and get ready for the second round but I'll keep everyone up-to-date on whatever else comes my way! :)
I haven't lost my hair yet but I am starting to shed a little more than normal. I think I'm still in denial about losing my hair. I'm just not sure how to mentally prepare for the inevitable. Today I'm getting my second treatment and by this weekend I should be bald. The only thing that makes me feel better is the fact that Brian's favorite TV character is George Costanza and he is bald. Also, I only have a couple more treatments until I can start growing my hair back. I'm going to pray that it comes back exactly the same as when it left. I also need to pray that my hair grows FAST so I can start rocking the short due and begin the long journey of growing it back out.
Right now I'm at my second treatment and a harpist has come to play for everyone. It's very nice and relaxing. Today I also noticed that there was another girl somewhat around my age getting the same chemo drugs as myself. I'm unsure what treatment round she was on but I wish her luck! I'm nervous about my second treatment. I have some emotional battles ahead of me and I'm wondering how I'm going to handle them. I'm trying to stay positive but this whole journey is so emotionally challenging. Well, time to relax and get ready for the second round but I'll keep everyone up-to-date on whatever else comes my way! :)
Found this Great Song!
I have unanswered prayers
I have trouble I wish wasn't there
And I have asked a thousand ways
That You would take my pain away
That You would take my pain away
I am trying to understand
How to walk this weary land
Make straight the paths that crookedly lie
Oh Lord, before these feet of mine
Oh Lord, before these feet of mine
When my world is shaking
Heaven stands
When my heart is breaking
I never leave Your hands
When You walked upon the Earth
You healed the broken, lost, and hurt
I know You hate to see me cry
One day You will set all things right
Yea, one day You will set all things right
When my world is shaking
Heaven stands
When my heart is breaking
I never leave Your hands
Your hands
Your hands that shape the world
Are holding me, they hold me still
Your hands that shape the world
Are holding me, they hold me still
When my world is shaking
Heaven stands
When my heart is breaking
I never leave You when...
When my world is shaking
Heaven stands
When my heart is breaking
I never leave...
I never leave Your hands
By: JJ Heller
I have trouble I wish wasn't there
And I have asked a thousand ways
That You would take my pain away
That You would take my pain away
I am trying to understand
How to walk this weary land
Make straight the paths that crookedly lie
Oh Lord, before these feet of mine
Oh Lord, before these feet of mine
When my world is shaking
Heaven stands
When my heart is breaking
I never leave Your hands
When You walked upon the Earth
You healed the broken, lost, and hurt
I know You hate to see me cry
One day You will set all things right
Yea, one day You will set all things right
When my world is shaking
Heaven stands
When my heart is breaking
I never leave Your hands
Your hands
Your hands that shape the world
Are holding me, they hold me still
Your hands that shape the world
Are holding me, they hold me still
When my world is shaking
Heaven stands
When my heart is breaking
I never leave You when...
When my world is shaking
Heaven stands
When my heart is breaking
I never leave...
I never leave Your hands
By: JJ Heller
Wednesday, June 2, 2010
My First Chem-HO June 2nd, 2010
Today I started my chemotherapy treatment. I was nervous all day long! Anyway, I made it and honestly it wasn't that bad. That being said, the road ahead might be a different story. Here is some chemotherapy education for everyone.
There are many different chemotherapy drugs out there for all types of cancer. Each patient is assigned a type of chemotherapy and a duration and not all breast cancer patient's have the same chemotherapy treatment. I'm taking two chemo drugs called Adriamycin and Cytoxan also known as A/C. I will be taking A/C for a duration of four treatments every other week. Seems easy enough but let me fill you in on the side effects: hair loss, nausea, vomiting, poor appetite, loss of fertility, diarrhea, mouth sores, bladder irritation and bleeding, low blood counts, eyes watering, red urine, and darkening of the nail beds. I'm hoping that I don't feel any of these things but I'm sure that will not be the case. I'm very thankful that today went well and seeing others going through even harder stuff at the clinic made me realize that I'm very lucky! One poor man had being getting chemotherapy since December 2009. I only have to do four treatments and now I only have three left so I'm counting my blessings. I'll keep you all up-to-date on how my weeks goes but for now it's time to rest!
Tuesday, May 25, 2010
The Hair Cut
My long blonde hair passed away on Friday May 21st at 4pm. Survivors of this passing is Lauren Drury the hair's owner. Unfortunately this passing was not a surprise to many but took much courage for the hair to forfeit it's life over for the fight against stupid cancer. My long blonde hair was a companion that I loved and cared for deeply. Throughout the many years of dying it multiple colors my hair still stood by me with confidence ready for the next adventure. It held it's blonde color with pride and took complements with ease, always making me feel good about myself. My long blonde hair has helped me build up confidence and has never left me wanting more style, thickness, or beauty. The words “bad hair day” are not in my long blonde hair's vocabulary! I only have many wonderful memories about my long blonde hair and will miss it everyday that it is gone. I know my hair wasn't prepared for cancer and me as well, but God has his own special plan for my life and if he doesn't reunite me with my glorious, lovely, vivacious, thick, blonde hair I might have a word with him. It has been a long journey hair and I love you so much, just know you will be missed and the second I have a chance to grow you out again I will!
Thursday, May 20, 2010
The "Power Port" May 18th 2010
Tuesday May 18th I had surgery for a port placement. If you are unsure of what a "power port" is, please let me explain. A port is a small device which is surgically implanted completely beneath your skin. The port connects to a small tube (catheter) which is inserted inside one of your arteries which delivers blood to your heart. This is necessary because chemo is composed of very strong drugs that can destroy the skin and veins in your arm. Most cancer patients get a port. This triangle thing sticking out of my skin looks scary....like a broken bone. I took some pictures to show what the port looks like after two days of surgery. Also, along with this port you get a "power port" discharge packet. The packet includes an identification card, identification bracelet, key ring, patient guide, and companion checklist. It's serious stuff. I'm a little nervous about my first poke in the new "power port".....I see many Xanax in my future!
I have Cancer!
So, I have cancer. It feels so weird saying those words "I have cancer". I still have a hard time believing that I have cancer. I remember going into the breast center for an ultrasound thinking it would be nothing. In fact I had many people, including my doctor, assure me it would be nothing. The day of the ultrasound I could see on the technician's faces that something was wrong. They had a radiologist come into the room and tell me I would have to have a biopsy on the lumps in my breast "just to be on the safe side". I was shocked. I've never had anything abnormal about my health. The weekend passed and the day came where I had my biopsy done and the radiologist telling me he would call with the results the next day. Everyone reassured me it was going to be fine. The next day I got a call around noon at work. The radiologist told me I had cancer and started rambling on other things that didn't make any sense at the time. I just cried. I couldn't rap my head around what was going on, what he was saying, what was I going to do. I remember thinking how calm he was, like he had made this call a million times. Didn't he understand what he was saying to me? Once I got off the phone I called my mom who came and picked me up from work. We cried.......and maybe drank a little.
The hardest part about cancer is the waiting. You have to wait to get more tests, then wait for the results, then wait to meet the surgeon/oncologist/plastic surgeon. No test or doctor can tell you what exactly is going on until surgery......which leads to more waiting for an opening for surgery. My surgery was on April 22nd at 1:30pm. I couldn't wait to have surgery! I wanted to know what kind of cancer was in my breast. After surgery I found out that I had four small tumors in the upper left quadrant of my right breast, ranging in size from 0.5cm to 1.5cm. Though the tumor was very aggressive at Grade 3, the stage was 1. This means that the cancer hasn't spread to my lymph nodes and the tissue around my tumors were clear of any abnormal cells. This was good news....when you have cancer.
Now that I knew what type of cancer I had I could make a plan with my oncologist for treatment. Did you know that there is a computerized system that you can enter your age and diagnosis and it will summarize your chances of recurrence/death from your specific cancer? Well, they do and it's damn depressing. I thought I was lucky until some stupid computer program told me I only had a 50% chance of never getting cancer again if I didn't do chemo plus other therapy drugs.
So, this brings us to the present...of getting a port placed, cutting my hair, and having four rounds of chemotherapy!
The hardest part about cancer is the waiting. You have to wait to get more tests, then wait for the results, then wait to meet the surgeon/oncologist/plastic surgeon. No test or doctor can tell you what exactly is going on until surgery......which leads to more waiting for an opening for surgery. My surgery was on April 22nd at 1:30pm. I couldn't wait to have surgery! I wanted to know what kind of cancer was in my breast. After surgery I found out that I had four small tumors in the upper left quadrant of my right breast, ranging in size from 0.5cm to 1.5cm. Though the tumor was very aggressive at Grade 3, the stage was 1. This means that the cancer hasn't spread to my lymph nodes and the tissue around my tumors were clear of any abnormal cells. This was good news....when you have cancer.
Now that I knew what type of cancer I had I could make a plan with my oncologist for treatment. Did you know that there is a computerized system that you can enter your age and diagnosis and it will summarize your chances of recurrence/death from your specific cancer? Well, they do and it's damn depressing. I thought I was lucky until some stupid computer program told me I only had a 50% chance of never getting cancer again if I didn't do chemo plus other therapy drugs.
So, this brings us to the present...of getting a port placed, cutting my hair, and having four rounds of chemotherapy!
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